myelodysplastic syndromes

buaahao

国内同事妹妹的女儿（大概不到10岁）得了myelodysplastic syndromes（以前称白血病前期），据说到中国最好的医院看了（天津中国医学科学院血液学研究所血液病医院），医生说靠药物治愈的可能性没有，唯一可行的是骨髓移植。我帮我同事问问，这个病是不是在澳洲，可以得到更好治疗？澳洲那家医院比较好，在这个方面？我看了论坛里面，有些帖子提到了墨尔本皇家儿童医院。另外我看，有些帖子说，在澳洲这边医院里，经过了化疗后，恢复的也很好。是不是这也因人和病历而异，并不是因为澳洲的医疗水平较高呢?

谢谢。

chensam1022

Myelodysplastic syndromes (MDS) are a group of diseases which all affect the production of normal blood cells in the bone marrow.In MDS, abnormal bone marrow stem cells produce increased numbers of immature blood cells. These cells do not grow properly and often die prematurely.

Many people, particularly in the early stage of disease remain very well, living a relatively normal life for a long time without any treatment.

If symptoms of anaemia are interfering with your normal daily activities, your doctor may recommend that you have a red blood cell transfusion.

Erythropoeitin (EPO) is an example of a growth factor which is used to stimulate the production of more red blood cells and can in some cases reduce the need for frequent blood transfusions.

In general, chemotherapy is only used in MDS in situations when there is a need to control a rising white cell count or if the MDS is transforming or has transformed into leukaemia.

Stem cell transplantation (also called a bone marrow transplant) using a suitably matched donor, is the only potential cure for MDS.

There are several new approaches being developed for the treatment of MDS. These include new chemotherapy drugs, biological modifiers and immunomodulatory drugs which harness the power of the immune system to help fight disease.

chensam1022

above r summary of MDS treatment.. what treatment applied on ur ftiend's kid would be depent on her disease stage. good luck

buaahao

chensam1022 发表于 2013-6-19 11:47
Myelodysplastic syndromes (MDS) are a group of diseases which all affect the production of normal bl ...

谢谢。
不过你知道澳洲哪家医院治疗这个比较好吗？

chensam1022

westmead children hospital

花生

如果小孩子没有澳洲身份，还是不要考虑来这里治疗了。费用不小。
家里真有钱，不如去美国治疗。

buaahao

chensam1022 发表于 2013-6-19 14:30
westmead children hospital

谢谢。